Jiaxing women get the probability of 1100000 of the disease, most reluctant to children-www.semm.com

Jiaxing women get the probability of 1/100000 of the disease most reluctant to children, this is a sad picture. A little boy was lying on the railing at the entrance of HanNing Railway Station, and watched her mother walk away. Boy called Xiao cola, who lives in Jiaxing Haining Changan town Rainbow Village Heart Group, 9 years old this year. His mother was going to take a train and go to Beijing Cancer Hospital for chemotherapy. His mother, Zhi Yan, is struggling with the disease. Less than 30 years old, she suffered a bolt from the blue. At the beginning of 2011, when she was a foreign trade merchandiser in a leather factory, Ju Zhiyan felt uncomfortable, "back stabbing pain, but also thought it was bad sitting position, or caused by cholecystitis."." Uncomfortable two days later, her husband Yang Qiangzhong took her to the Central Hospital of Haining (the Haining hospital) made a B. Absolutely unexpected! The doctor told her that there was a tumor on her liver. Thunderbolt, perhaps that is the situation! Ju Zhiyan, born in 1983, was less than 30 years old! They immediately went to the city people’s hospital to do CT, the doctor said, this operation, the situation is not good. They also went to Zhejiang first hospital for a whole body examination and made a liver biopsy. The doctor who was in charge of the puncture saw the result and exclaimed, "Oh dear."! How is tumor full of pigment?!" She had malignant melanoma, stage four, later. The doctor told Ju Zhi Yan said, cutaneous malignant melanoma is still relatively common, especially white, but this type of mucosa (visceral) malignant melanoma is rare in yellow, the incidence rate is about 1/100000. High school sprint record holder, usually even have a fever rarely some Ju Zhi Yan, seems to have just been a doctor sentenced to death with reprieve. The long way to seek medical care is rare, so the treatment is a step by step exploration. At the beginning of the day, the Zhi Yan swallows interferon every day and suffers from the side effects of the disease – persistent high fever, 38, 39, 40.5… Vomit! Pain! The hair fell one by one. The height of 1 meters 63, she fell from 110 pounds crazy thin, the thinnest when only more than 60 pounds, she described "with the Internet that anorexia people almost."." In 2012, she went to the Beijing Cancer Hospital for treatment, which might be the last straw in his life. "There’s only one kidney cancer melanoma specialist in china." Ju Zhiyan said. Ju Zhiyan, who had never been out of Zhejiang before the disease, went back and forth between Beijing and Haining almost every month. Over the years, train tickets have been thick. It’s about 300. Of the more than 100 pieces of CT film left at home, it’s hard to hold them in your hand. She never understood that her body was so healthy. Why did she suffer such a terrible disease? The doctor told her: do not do laser point mole, nor to scratch the surface of those moles, not to make it bleed! May cause some residual melanoma cells to be stimulated, causing cancer. In the early stage of melanoma, it only attacks the surface of the skin or the dermis; in the middle stage, it will transfer to the surrounding lymph nodes; in the late stage, there will be distant metastasis. The desire for life, the family and children’s concern, let her between hope and disappointment for 5 years, Ju Zhiyan experience ~!

嘉兴女子得了概率十万分之一的病 最舍不得孩子 这是一张让人心酸的照片。一个小男孩趴在铁路海宁站进站口的栏杆那儿,目送母亲的身影离开。男孩叫小可乐,家住嘉兴海宁长安镇虹金村红心组,今年9岁。当时他的母亲要乘火车,去北京肿瘤医院化疗。他的母亲居志燕正在与病魔作斗争。不到30岁的她遭遇“晴天霹雳”2011年年初的一天,当时在一家皮件厂做外贸跟单员的居志燕感觉身体不舒服,“后背刺痛,还以为是坐姿不好造成的,要么是胆囊炎引起。”不舒服两天后,丈夫杨强忠带着她去海宁市中心医院(当时的海宁三院)做了一个B超。万万没想到!医生告诉她,肝脏上长了肿瘤。晴天霹雳或许就是那样的情境!1983年出生的居志燕当时还不到30岁!他们马上到市人民医院做了CT,医生说,这个要手术,情况不好。他们又到浙一医院做了一次全身检查,还做了肝穿刺。负责穿刺的医生看到结果后,惊呼:“哎呀!怎么肿瘤富有色素!”她得了恶性黑色素瘤,四期,也就是晚期。医生跟居志燕说,皮肤型的恶性黑色素瘤还比较常见,尤其是白种人,但得这种粘膜型(内脏)恶性黑色素瘤在黄种人中十分少见,发病率约是十万分之一。中学时短跑纪录保持者、平时连感冒发烧都很少会有的居志燕,好像一下子就被医生判了死缓。漫长的求医路因为罕见,所以治疗都是一步步探索着来。一开始,居志燕每天要打干扰素,并承受其副作用带来的痛苦——持续高烧,38℃,39℃,40.5℃…呕吐!疼痛!头发一把一把地往下掉。身高1米63的她从110斤疯狂地瘦下来,最瘦的时候只有60多斤,她形容“跟网上那种患上厌食症的人差不多。”2012年,她开始去北京肿瘤医院接受治疗,这也许是生命中的最后一根稻草。“国内只有这里有一个肾癌黑色素瘤专科。”居志燕说。以前从没有出过浙江省的居志燕,得病后,几乎每个月,都要往返于北京和海宁之间。这些年下来,火车票已经有厚厚的几叠。算一算,大概有300张。拍过的CT片光留在家里的已经有100多张,抱在手里都很吃力。她始终不明白,自己的身体原来那么健康,为什么会患上这么可怕的病?医生告诉她:不要做激光点痣,也不要去挠身体表面那些痣,更不能弄它弄出血!可能导致残留一些受到刺激的黑色素细胞,引起癌变。黑色素瘤早期,只是侵袭皮肤的表层或是真皮层;到中期时,会转移至周围的淋巴结;晚期时,会出现远处转移。对生的渴望,对家庭和孩子的牵挂,让她在希望与失望之间坚持了5年,居志燕经历了靶向治疗、免疫治疗、放疗、化疗、介入手术,还有化疗与介入相结合的治疗方法。做介入化疗,在超声引导下将一根长长的射频针从大腿腹股沟动脉刺入,到肝脏。“做这个手术时由于靠近胃,还引起剧烈的反胃、呕吐。“抱着脸盆,才有安全感。”“介入化疗,有些男的做2次就受不了。”居志燕说。而这些年居志燕已经做了将近20次!她用“死去活来”来形容这种过程。如果不需要家属签字的治疗,她总是“孤军作战”去北京。坐火车去北京要14个小时,居志燕心疼钱,经常背着丈夫偷偷买一张硬座票。有时为了省下一天的住宿费,当天才进行完化疗的她拖着疲惫的身体赶火车回来。居志燕还跟丈夫开玩笑:“我在前方打仗,你在后方供给枪支弹药。”深情的丈夫和好心人的帮助丈夫杨强忠在禾众集团海宁众达4S店里做售后,年薪根据业绩来,大概五六万。这是一个十分努力工作,想让老婆孩子过得好一点的男人!这些年给妻子治病,大约花掉了95万元,虽然居志燕有职工医保,但大部分药物是进口药,没有列入医保目录,甚至有些新药连目录里都看不到。属于自费,不能报销。虽然职工医保报销了20多万元,也已彻底压垮了这个原本就不算富裕的家庭。这些年,许多杨强忠的同事、朋友,还有他所工作的禾众集团一直支持着这个家庭,来自他们爱心款已经达10多万,集团还帮杨强忠申请困难职工。有朋友还把居志燕的病情放到网上众筹平台,希望能给这个家带来希望。钱无疑是支撑她跑下去的重要资本。但仅有钱,是不够的。越往后跑,她越觉得“力不从心”。2013年年底,居志燕在北京连着做了3次化疗和介入化疗,“人一下子不行了。”当时医生让她回来了,“撑不撑得过去就靠我自己了。”在家躺了三个多月的居志燕为了减轻浑身的疼痛,她有一天最多吞下了30粒吗啡!按照常规剂量,“普通人一天是半粒,最多不能超过1粒”。比起身上的疼痛,心里的痛更难熬。她太清楚这病的可怕!有好多次,居志燕真的想过不治病了,就不用再花钱了。她的脑子里很多次闪过一个念头,“死了反而是种解脱”。还有很多牵挂……可居志燕还有很多无法割舍的东西。她愧对父母。记得多年前,她只有12岁的弟弟出了意外,被飞驰而过的火车撞了。命是捡回来了,可这辈子成了残疾人,一直由父母照顾。“父母为我们姐弟操心太多,我还没尽孝呢!”她还愧对丈夫。“这些年,让他跑里跑外,承受了太大的压力,背负了太多责任,感谢他的不离不弃。”居志燕说。说到孩子,一直很坚强的她忍不住数度哽咽。“孩子因我少了很多母亲的疼爱,甚至小小的年纪很早熟,我没有成为一个合格的母亲!”不管身体情况如何,居志燕总会努力去接孩子放学,哪怕脚肿得连走路都困难,她还是会放弃轮椅,艰难地站着迎接孩子。只不过在5年多前,当时还只有3岁多的小可乐的话是:“妈妈,你们总是去北京干吗?要去多久呢?”懂事后的小可乐才明白,妈妈去北京,为了治病。如今,每次去北京前,小可乐脸上虽然表现出一脸不舍,却像个大人一样嘱咐妈妈:“你一个人去北京要照顾好自己,冷了穿衣,热了脱衣,不要舍不得花钱,要给自己买点好吃的。”知道妈妈要从北京回来了,小可乐就会给妈妈写张卡片,用这种方式迎接她回家。上面写着“妈妈,我爱你!”,或者“祝你早日康复”。这是居志燕生病前的照片。她多想回到那时候啊!明天也就是10月30日,居志燕又将踏上去北京化疗的路程,她不知道自己何时能回来。依旧会跟孩子重复那句话:“妈妈很快会回来的。”居志燕知道,到时儿子一定会站在火车站进站口栏杆那里跟她挥手,目送她离开。而居志燕依旧会像以前一样,忍住眼泪,不会回头多看孩子一眼,因为她怕自己忍不住在孩子面前哭出声来。这是一个悲伤的故事。报姐从后台获悉这个求助信息后,去了居志燕的家。这个长安镇虹金村的普通家庭,遭受了常人难以想象的磨难……世上总是好人多,希望你能让更多人关注这个家庭,帮帮他们~相关的主题文章: